Alone we are rare, together we are strong

As many rare diseases are severe forms of more common diseases, studies on rare diseases are crucial for identifying cellular and molecular pathways that are associated with the development of other more common diseases, potentially impacting millions more people.
Henriette Lamprecht
Did you know?OrphanIn some parts of the world, the term orphan disease describes a rare disease whose rarity results in little or no funding or research for treatments, without fin ...

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Republikein 2024-04-17

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Premier League: Chelsea 6 vs 0 Everton | Arsenal 0 vs 2 Aston Villa | West Ham 0 vs 2 Fulham | Liverpool 0 vs 1 Crystal Palace LaLiga: Osasuna 0 vs 1 Valencia | Real Sociedad 2 vs 2 Almería | Athletic Club 1 vs 1 Villarreal | Granada 2 vs 0 Deportivo Alaves | Las Palmas 0 vs 2 Sevilla SerieA: Atalanta 2 vs 2 Hellas Verona | Fiorentina 1 vs 1 Genoa | Inter Milan 2 vs 2 Cagliari | Udinese 1 vs 1 AS Roma | Sassuolo 3 vs 3 AC Milan | Napoli 2 vs 2 Frosinone European Championships Qualifying: Southampton 3 vs 0 Preston North End English Championship: Southampton 3 vs 0 Preston North End Katima Mulilo: 18° | 34° Rundu: 19° | 34° Eenhana: 21° | 36° Oshakati: 23° | 35° Ruacana: 24° | 37° Tsumeb: 20° | 33° Otjiwarongo: 18° | 32° Omaruru: 18° | 34° Windhoek: 17° | 30° Gobabis: 17° | 31° Henties Bay: 15° | 21° Wind speed: 18km/h, Wind direction: S, Low tide: 05:58, High tide: 12:09, Low Tide: 18:01, High tide: 00:35 Swakopmund: 15° | 17° Wind speed: 19km/h, Wind direction: SW, Low tide: 05:56, High tide: 12:07, Low Tide: 17:59, High tide: 00:33 Walvis Bay: 16° | 24° Wind speed: 24km/h, Wind direction: SW, Low tide: 05:56, High tide: 12:06, Low Tide: 17:59, High tide: 00:32 Rehoboth: 17° | 32° Mariental: 18° | 33° Keetmanshoop: 19° | 33° Aranos: 18° | 32° Lüderitz: 15° | 29° Ariamsvlei: 19° | 33° Oranjemund: 13° | 23° Luanda: 26° | 29° Gaborone: 14° | 27° Lubumbashi: 16° | 24° Mbabane: 13° | 26° Maseru: 11° | 22° Antananarivo: 12° | 23° Lilongwe: 16° | 25° Maputo: 18° | 28° Windhoek: 17° | 30° Cape Town: 16° | 21° Durban: 18° | 26° Johannesburg: 13° | 24° Dar es Salaam: 23° | 30° Lusaka: 16° | 26° Harare: 14° | 28° Currency: GBP to NAD 23.57 | EUR to NAD 20.14 | CNY to NAD 2.62 | USD to NAD 18.94 | DZD to NAD 0.14 | AOA to NAD 0.02 | BWP to NAD 1.33 | EGP to NAD 0.38 | KES to NAD 0.14 | NGN to NAD 0.02 | ZMW to NAD 0.75 | ZWL to NAD 0.04 | BRL to NAD 3.62 | RUB to NAD 0.2 | INR to NAD 0.23 | USD to DZD 134.54 | USD to AOA 832.82 | USD to BWP 13.85 | USD to EGP 48.8 | USD to KES 131.48 | USD to NGN 1138.13 | USD to ZAR 18.95 | USD to ZMW 25.2 | USD to ZWL 321 | Stock Exchange: JSE All Share Index 72999.63 Down -2.04% | Namibian Stock Exchange (NSX) Overall Index 1520.5 Down -2.01% | Casablanca Stock Exchange (CSE) MASI 13362.33 Down -0.08% | Egyptian Exchange (EGX) 30 Index 29400.84 Down -0.73% | Botswana Stock Exchange (BSE) DCI Same 0 | NSX: MTC 7.75 SAME | Anirep 8.99 SAME | Capricorn Investment group 17.34 SAME | FirstRand Namibia Ltd 49 DOWN 0.50% | Letshego Holdings (Namibia) Ltd 4.1 UP 2.50% | Namibia Asset Management Ltd 0.7 SAME | Namibia Breweries Ltd 31.49 UP 0.03% | Nictus Holdings - Nam 2.22 SAME | Oryx Properties Ltd 12.1 UP 1.70% | Paratus Namibia Holdings 11.99 SAME | SBN Holdings 8.45 SAME | Trustco Group Holdings Ltd 0.48 SAME | B2Gold Corporation 47.34 DOWN 1.50% | Local Index closed 677.62 UP 0.12% | Overall Index closed 1534.6 DOWN 0.05% | Osino Resources Corp 19.47 DOWN 2.41% | Commodities: Gold US$ 2 394.04/OZ UP +0.47% | Copper US$ 4.30/lb UP +0.34% | Zinc US$ 2 799.90/T UP 1.06% | Brent Crude Oil US$ 90.03/BBP DOWN -0.0043 | Platinum US$ 957.98/OZ DOWN -0.0019 Sport results: Premier League: Chelsea 6 vs 0 Everton | Arsenal 0 vs 2 Aston Villa | West Ham 0 vs 2 Fulham | Liverpool 0 vs 1 Crystal Palace LaLiga: Osasuna 0 vs 1 Valencia | Real Sociedad 2 vs 2 Almería | Athletic Club 1 vs 1 Villarreal | Granada 2 vs 0 Deportivo Alaves | Las Palmas 0 vs 2 Sevilla SerieA: Atalanta 2 vs 2 Hellas Verona | Fiorentina 1 vs 1 Genoa | Inter Milan 2 vs 2 Cagliari | Udinese 1 vs 1 AS Roma | Sassuolo 3 vs 3 AC Milan | Napoli 2 vs 2 Frosinone European Championships Qualifying: Southampton 3 vs 0 Preston North End English Championship: Southampton 3 vs 0 Preston North End Weather: Katima Mulilo: 18° | 34° Rundu: 19° | 34° Eenhana: 21° | 36° Oshakati: 23° | 35° Ruacana: 24° | 37° Tsumeb: 20° | 33° Otjiwarongo: 18° | 32° Omaruru: 18° | 34° Windhoek: 17° | 30° Gobabis: 17° | 31° Henties Bay: 15° | 21° Wind speed: 18km/h, Wind direction: S, Low tide: 05:58, High tide: 12:09, Low Tide: 18:01, High tide: 00:35 Swakopmund: 15° | 17° Wind speed: 19km/h, Wind direction: SW, Low tide: 05:56, High tide: 12:07, Low Tide: 17:59, High tide: 00:33 Walvis Bay: 16° | 24° Wind speed: 24km/h, Wind direction: SW, Low tide: 05:56, High tide: 12:06, Low Tide: 17:59, High tide: 00:32 Rehoboth: 17° | 32° Mariental: 18° | 33° Keetmanshoop: 19° | 33° Aranos: 18° | 32° Lüderitz: 15° | 29° Ariamsvlei: 19° | 33° Oranjemund: 13° | 23° Luanda: 26° | 29° Gaborone: 14° | 27° Lubumbashi: 16° | 24° Mbabane: 13° | 26° Maseru: 11° | 22° Antananarivo: 12° | 23° Lilongwe: 16° | 25° Maputo: 18° | 28° Windhoek: 17° | 30° Cape Town: 16° | 21° Durban: 18° | 26° Johannesburg: 13° | 24° Dar es Salaam: 23° | 30° Lusaka: 16° | 26° Harare: 14° | 28° Economic Indicators: Currency: GBP to NAD 23.57 | EUR to NAD 20.14 | CNY to NAD 2.62 | USD to NAD 18.94 | DZD to NAD 0.14 | AOA to NAD 0.02 | BWP to NAD 1.33 | EGP to NAD 0.38 | KES to NAD 0.14 | NGN to NAD 0.02 | ZMW to NAD 0.75 | ZWL to NAD 0.04 | BRL to NAD 3.62 | RUB to NAD 0.2 | INR to NAD 0.23 | USD to DZD 134.54 | USD to AOA 832.82 | USD to BWP 13.85 | USD to EGP 48.8 | USD to KES 131.48 | USD to NGN 1138.13 | USD to ZAR 18.95 | USD to ZMW 25.2 | USD to ZWL 321 | Stock Exchange: JSE All Share Index 72999.63 Down -2.04% | Namibian Stock Exchange (NSX) Overall Index 1520.5 Down -2.01% | Casablanca Stock Exchange (CSE) MASI 13362.33 Down -0.08% | Egyptian Exchange (EGX) 30 Index 29400.84 Down -0.73% | Botswana Stock Exchange (BSE) DCI Same 0 | NSX: MTC 7.75 SAME | Anirep 8.99 SAME | Capricorn Investment group 17.34 SAME | FirstRand Namibia Ltd 49 DOWN 0.50% | Letshego Holdings (Namibia) Ltd 4.1 UP 2.50% | Namibia Asset Management Ltd 0.7 SAME | Namibia Breweries Ltd 31.49 UP 0.03% | Nictus Holdings - Nam 2.22 SAME | Oryx Properties Ltd 12.1 UP 1.70% | Paratus Namibia Holdings 11.99 SAME | SBN Holdings 8.45 SAME | Trustco Group Holdings Ltd 0.48 SAME | B2Gold Corporation 47.34 DOWN 1.50% | Local Index closed 677.62 UP 0.12% | Overall Index closed 1534.6 DOWN 0.05% | Osino Resources Corp 19.47 DOWN 2.41% | Commodities: Gold US$ 2 394.04/OZ UP +0.47% | Copper US$ 4.30/lb UP +0.34% | Zinc US$ 2 799.90/T UP 1.06% | Brent Crude Oil US$ 90.03/BBP DOWN -0.0043 | Platinum US$ 957.98/OZ DOWN -0.0019